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Staying connected after the active caregiving role ends

When someone dies, the people who provided care may still need companionship and practical help. Research on families in residential aged care prompts us to think about support that continues beyond the care schedule.

A woman and a friend begin sketching together on a park bench during a quiet autumn afternoon.
Original genus editorial illustration, created with OpenAI image generation. Fictional people and setting.

What we found

A study published in November 2025 (opens in a new tab) explored grief and loss among families connected with residential aged care in South Australia. Researchers spoke with 10 family caregivers and 28 staff across nine services. Their accounts included the importance of relationships during care and after a death.

“I had lots of phone calls from friends and visits from friends.”

— A family caregiver interviewed in the study

The interviews and focus groups took place in October and November 2020. These are experiences from a small, specific setting, not evidence that a particular support program treats grief. The finding that stays with us is the place of ordinary people who kept making contact.

Why this matters to us

Our genus interpretation is that support should not be defined only by an active care schedule. When appointments and daily care tasks stop, a person may still face practical responsibilities, changed routines and the absence of someone whose life shaped each day.

Friends can be unsure whether to call. Organizations may know someone through their caregiving role and lose contact when that role changes. We believe there is room to ask what connection the person wants to keep, without assuming they want either constant company or complete privacy.

Keep the invitation open

Offer something specific and easy to decline: a short walk on Thursday, company while sorting an ordinary household task, or a meal together. Avoid making the person design all the help before anyone can offer it.

Ask whether they would like another invitation if this one does not suit. A declined visit should not automatically become the end of contact. Equally, agreeing once does not mean an open invitation to arrive unannounced.

Listen for what matters to them. They may want to talk about the person who died, discuss something entirely different, or spend time together without much conversation. Let their preference guide the visit.

If a practical task feels overwhelming, ask which small part someone else could take on. Friends and community contacts can also help locate bereavement support when the person wants it. There is no need to turn companionship into a deadline for feeling better.

How genus can support continued connection

Today, the genusConnect Care App (opens in a new tab) supports enabled conversations, events and tasks for invited community members. Features and access depend on the organization’s configuration.

Where an appropriate community remains available, those tools can help people coordinate agreed visits or practical help. They are not bereavement treatment. The important decision is human: who will remain present, what contact is welcome, and how to respect the person’s choices.

One question to take away

Who in our circle might still appreciate an invitation now that other people assume the caregiving chapter is over?

Supporting references

  1. “I thought he had longer than that”: family caregivers’ experiences of grief, loss, and bereavement in residential aged care (opens reference preview; direct link opens in a new tab)

    BMC Palliative Care · 2025-11-26

    Vandersman and colleagues report qualitative accounts from 10 family caregivers and 28 staff across nine South Australian residential aged care services. Interviews and focus groups took place in October–November 2020; the paper explores grief and relational support, not treatment effectiveness.

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